Safety is important, but for people with hemophilia, avoiding any risk can feel like missing out on life, says columnist.
Parents of children with hemophilia, especially mothers, often experience deep guilt linked to the genetic nature of the ...
Columnist Jennifer Lynne says that, while living with hemophilia, spontaneous soft-tissue bleeds can occur without warning and rattle her.
Columnist Joe MacDonald knew giving in to fear wouldn't help his son's hemophilia pain, so he developed ways to distract him ...
Whether with quilting or hemophilia care, sometimes it's necessary to learn lessons the hard way, writes columnist.
For guest writer Jared Formalejo, balancing parenting, relationships, and medical care is all part of learning how to live ...
Lack of sleep increases columnist G Shellye Horowitz's susceptibility to injury, which can be dangerous with hemophilia and ...
For columnist Allyx Formalejo and her husband, Jared, the new year is about building and committing to systems that help them ...
Columnist Jennifer Lynne talks with fellow hemophilia patient Tara Blakely about the impact of losing more than 100 pounds.
A five-year study suggests gene therapy may help reduce bleeding and infusions as a hemophilia B treatment option.
End-of-life planning may be daunting, says columnist G Shellye Horowitz, but it's also a gift to yourself and your loved ones ...
Hympavzi (marstacimab) reduced bleeding rates and improved quality of life in adults and adolescents with hemophilia A or B who have inhibitors (antibodies against standard replacement therapies).
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