Two brothers, one rare disease and a race against time
Two brothers, one rare disease and a race against time
3 weeks ago
news12.com
Acute Hepatic Porphyria - Two of Me Documentary | Pinpoint AHP®
Acute Hepatic Porphyria - Two of Me Documentary | Pinpoint AHP®
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While people try to make the connection between vampires and porphyria, it’s not really there and connecting the two only stigmatizes the disease. #vampire #blood #disease #tiktokdoc #LearnOnTikTok | Zachary Rubin, MD
1:30
While people try to make the connection between vampires and porphyria, it’s not really there and connecting the two only stigmatizes the disease. #vampire #blood #disease #tiktokdoc #LearnOnTikTok | Zachary Rubin, MD
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FacebookZachary Rubin, MD
Brothers thriving and thankful to have each other despite sharing rare medical condition
Brothers thriving and thankful to have each other despite sharing rare medical condition
May 24, 2021
wrtv.com
Addi (her chosen name is now, Adri) has finally found her forever home! She has two brothers (also adopted) who adore her and she is thriving in so many ways! Adri has congenital erythropoietic porphyria and her compassion and love for those around her shine brightly everywhere she goes. @rodsheroes is so honored to have met her in Colombia and to have been a part of this amazing journey. We can’t wait to see what is next for this amazing family. Stay tuned!•#butterflyskin #congenitalerythropoie
0:43
Addi (her chosen name is now, Adri) has finally found her forever home! She has two brothers (also adopted) who adore her and she is thriving in so many ways! Adri has congenital erythropoietic porphyria and her compassion and love for those around her shine brightly everywhere she goes. @rodsheroes is so honored to have met her in Colombia and to have been a part of this amazing journey. We can’t wait to see what is next for this amazing family. Stay tuned!•#butterflyskin #congenitalerythropoie
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