2.8K views · 134 reactions | “Heroes are made by the path they choose, not the powers they’re graced with.” -Thor’s friend, Ironman 隸‍♀️ Chris Hemsworth EB Superhero John Hudson Dilgen - EB imagines a world where no child has to live with EB long enough to experience the pain that he has. Help us turn John’s dream into reality by donating at the link below. 曆❤️ https://bit.ly/3RDmCWi | EB Research Partnership | Facebook
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2.8K views · 134 reactions | “Heroes are made by the path they choose…
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FacebookEB Research Partnership
At the 2nd annual #VentureIntoCures in 2021, Mayim Bialik interviewed Dr. Jean Tang and Dr. Andy South who are working to find a cure for Epidermolysis Bullosa. Since then we've seen remarkable progress on our mission towards a cure, including two FDA approved EB treatments. Our goal is to cure EB by 2030. Help us reach that goal by making a donation to life-saving research at https://give.ebresearch.org/give/335486?c_src=Facebook | EB Research Partnership
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At the 2nd annual #VentureIntoCures in 2021, Mayi…
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FacebookEB Research Partnership
Epidermolysis bullosa (EB) is a genetic blistering skin disease that causes a baby's skin to blister and peel off, causing extreme pain and sometimes death. No Baby Blisters aims to create an affordable cure for forgotten, medically neglected children, by committing to finding a fast cure through the FDA. Learn more about EB with Dr. Aaron Tabor! #NoBabyBlisters #epidermolysisbullosa #fastcureplan #cureforEB #raredisease #skindisease #geneticdiseases #genetherapy #geneengineering | GenScript
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Forbidden Cures and Protocol Medicine
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amazon
Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a devastating genetic condition that makes even minor friction cause wounds and scarring. The new documentary Matter of Time, premiering at Tribeca Festival, is spotlighting the urgent need for research and cures. If you or someone you know experiences unexplained skin fragility or blistering, early diagnosis can change outcomes. 📸 photo credit: Mayo Clinic & American Academy of Dermatology Book a consult: www.drannachacon.com | Ann
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Epidermolysis Bullosa (EB), also known as ‘butterfly skin,’ is a deva…
46 views4 months ago
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Big time gamer That Geek Aaron and Adam Sandler talk video games and what it's like to live with Epidermolysis Bullosa (EB) during Venture into Cures. With your help, we can #HealEB forever. Head to ebresearch.org to learn more. Text HEALEB to 41411 to donate. | EB Research Partnership
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