4.4K views · 400 reactions | Darin Nakakihara on Reels | Facebook
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4.4K views · 400 reactions | Darin Nakakihara on Reels | Facebook
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Darin Nakakihara on Reels
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Darin Nakakihara on Reels
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270K views · 4K reactions | I can’t breathe. I can barely eat. I can’t stand. But somehow… I’m still finding joy every single day. If that’s not a reason to keep going, I don’t know what is. #ALS #EndALS #ChooseJoy #ChronicIllness #WheelchairLife #MotorNeuronDisease | Darin Nakakihara | Facebook
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270K views · 4K reactions | I can’t breathe. I can barely eat. I can’t st…
15.5K views1 week ago
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Don’t stress about the tech. Just hit record. 📱 Start voice banking today with nothing but your phone. Record a video, talk to someone you love, and save your voice—your future self (and your people) will thank you. ❤️ #VoiceBanking #ALS #SaveYourVoice #DigitalLegacy #ALSawareness | Darin Nakakihara
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Don’t stress about the tech. Just hit record. 📱 Start voice banking today …
480 views8 months ago
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One year. Same disease. A very different voice. This is what ALS sounds like after 12 months. Every May 19, I’ll document my voice—until I no longer can. #ALS #VoiceProgression #GoFindSomeJoy #LouGehrigsDisease #TerminalIllness #ALSAwareness #BeforeAndAfter #OneYearLater #MND #VoiceBanking | Darin Nakakihara
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One year. Same disease. A very different voice. This is what ALS s…
1.1M views3 months ago
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They said 2-5 years. I said nah. This is what it looks like to keep showing up—even when the odds say you shouldn’t. #ALS #TerminalIllness #KeepGoing #Motivation #EndALS | Darin Nakakihara
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They said 2-5 years. I said nah. This is what it looks like to keep showi…
76.5K views3 months ago
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Imagine losing your voice… but still finding a way to speak. That’s my reality with ALS. I can’t talk anymore, but with my MacBook, ElevenLabs, and a virtual Stream Deck, I built my own system to keep speaking. One click = my voice. ALS may have taken my speech, but it hasn’t taken my voice. 💻🎙️ #GoFindSomeJoy #ALS #Accessibility #TechForGood #DisabilityAwareness | Darin Nakakihara
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Imagine losing your voice… but still finding a way to speak. That’s my …
27.2K views4 months ago
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2.7K reactions · 35 shares | So… who’s the guy yelling “Happy Mon…
224 views1 week ago
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A year ago, I set up my classroom. I never made it to the first day. ALS …
34.1K views3 months ago
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10 months. That’s all it took for ALS to go from “I’ve got this” to “I can’…
2.3K views8 months ago
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62K views · 712 reactions | Slow joy > fast life ️ ALS slows me down...
23.6K views1 week ago
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3.3K views · 1.1K reactions | NOT TODAY, ALS. My body stayed ho…
379 views3 weeks ago
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😎ALS made me retire, but I still hold very important meetings with my …
500 views7 months ago
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1.9K views · 3.3K reactions | Even when life feels impossible — there…
76.9K views1 week ago
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1.1K views · 1.1K reactions | She’s not just a dog. She’s my nurse, m…
401 views3 weeks ago
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323K views · 4.6K reactions | So last month I had emergency G-tube su…
21.7K views1 week ago
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Watch my 2-year ALS journey — from 2 days before diagnosis, to …
138.5K views3 months ago
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1.4K views · 2.4K reactions | What keeps me moving forward with AL…
30.7K views1 week ago
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Darin Nakakihara on Instagram: "It’s the lyric that lives rent-free in all o…
179.5K views4 months ago
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Darin Nakakihara on Instagram: "I know I should sleep… but the voic…
42.1K views5 months ago
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Darin Nakakihara on Instagram: "Imagine losing control of your bo…
123.7K views4 months ago
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Darin Nakakihara on Instagram: "If you or someone you love has bee…
58.7K views2 months ago
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Taylor Nakakihara ♡ on Instagram: "I’m about to be 32, and I am so ha…
10.8K views4 months ago
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Taylor Nakakihara ♡ on Instagram: "Haircuts with a side of healing he…
8.1K views2 months ago
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Darin Nakakihara on Instagram: "Watch my 2-year ALS journey — f…
187.4K views3 months ago
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Darin Nakakihara on Instagram: "One year. Same disease. A very d…
2.6M views3 months ago
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Darin Nakakihara on Instagram: "Last Friday, I got to witness som…
282.7K views9 months ago
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Darin Nakakihara on Instagram: "ALS has taken a lot from me. But …
352.3K views8 months ago
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Darin Nakakihara on Instagram: "One year ago, I could walk, talk cl…
82.9K views7 months ago
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Why I’m Grateful for My Partner (Eternal Love)
2.5K viewsNov 22, 2023
YouTubeDarin Nakakihara’s ALS Story
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